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Rank: Newbie
Groups: Registered
Joined: 8/12/2010
Posts: 2
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Hi has anybody else out there ended up with CRPS? I was told not to strain my joints when I was first diagnosed with RA and not to exercise them at all if they were inflamed- I've now been told I probably have CRPS because I've not used my joints. I'm somewhat confused not to mention just a little upset and angry.  Alex
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Alex,
What is CRPS I've not heard of this one. Lorna
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Rank: Advanced Member Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Alex, I'm Lorna I have had RA for almost 3 years, I was very ill to begin with but I am much better now. Sorry you have RA but glad to see you on the forum, someone will have an answer for you. Hope you get things to settle down. Take care Lorna x 
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Alex
Welcome to the forum, it is good you have found us. I have found it invaluable at times and you know you are never alone.
I am sorry to hear that you have now got this condition ( have just googled it ). I have been dx within the last year and so my knowledge is still quite limited and cannot help on this, hopefully others will be able to help.
Take care Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 7/10/2010 Posts: 43 Location: Little Dewchurch, Hereford
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Hi Alexandra!
Sorry to hear about your Complex Regional Pain Syndrome - I've not been unlucky enough to get it myself, but about 5 years ago when working as a GP registrar I had a pateinet who developed it in her lower leg after a ruptured Achilles tendon & surgery. She was previously really fit, & hurt herself unexpectedly playing squash. She was only about 30.
She was absolutely struck down by the CRPS - her leg was often incredibly cold and dripping with sweat as well as very painful.
It was actually her sports physio who suggested she asked if it might be CRPS & after looking it up I agreed.
We decided to try a course of an old-fashioned antidepressant, amitriptyline, to see if it would help. There's something weird about this med, which often helps obscure neurological pains. Anyway, after just a few weeks at a relatively low dose, well below the santi-depressant dose, it all completely vanished. if I hadn't seen her myself before & after I'd find it hard to believe her. it might be worth talking to your doc about it? - he/she'll need to check if its Ok with your other meds/conditions as well as whether he thinks it will help. But it might be worth a try....
Hope this helps
Sally xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Alex,
Welcome to the forum!
Sorry to hear you have CRPS (had to google it as I've never heard of it before) but that's good advice from Sally.
Looking forward to getting to know you.
Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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It does worry me when I get contary information, but was good to hear Sally's experience. When were you diagnosed with this rotten diease? What drugs are you trying?
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Welcome Alex
Welcome to NRAS formum, i cannot help you on this particular question, but Sally;s advice is sound.
I am Rose from Somerset aged 56 and diagnosed nearly 2 years ago. Still coming to terms and not on
right medication yet.
Keep posting
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Alex, and welcome to the forum. Sorry I can`t help with your query, but it looks like Sally has some good advice for you. Take care, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Hi Alex and welcome to the forum. Look forward to chatting with you in the future.
Eleanor x
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